I became disabled at 17. A motorcycle accident on an ordinary afternoon changed the entire direction of my life. I spent eighteen months in hospital. When I eventually came out, I had to relearn not just how to move through the world physically, but how to navigate institutions, services, workplaces and systems that had clearly not been designed with me in mind.
That experience — of moving from one side of the disability line to the other, suddenly and without warning — is the foundation of everything I do professionally. And yet for years I questioned whether it was something I should lead with. The professional world sends powerful signals about what counts as credible expertise. Research. Frameworks. Qualifications. Lived experience tends to sit in a different, less valued category.
I want to argue that this is exactly backwards.
When organisations bring in disability inclusion consultants, they are — whether they articulate it or not — trying to understand something they do not fully understand: what it is like to be disabled in their environment. The most rigorous audit, the most comprehensive framework, the most thorough policy review, cannot replace the knowledge that comes from actually having lived that experience.
I am not saying that research and frameworks are not valuable. They are. I use them. But they are tools for organising and communicating understanding — they are not the understanding itself.
Think about it from the other direction. If you were designing a new residential care home, you would want input from people who have lived in care homes, not just architects who have studied them. If you were designing a new benefits system, you would want input from people who have navigated the existing one. The principle is not complicated. The people with the most direct experience of a problem are the most valuable people to consult about solving it.
Disability inclusion is no different. When I walk into a building and immediately notice three things that will make it harder for a disabled person to navigate it — things that no one else in the room has clocked — that is not coincidence. It is expertise. Hard-won, embodied, unavoidable expertise.
There is also something important about the dynamic that lived experience creates in a room. When I talk to a leadership team about disability inclusion, I am not delivering information at them. I am speaking from a life. I am telling them what it actually feels like to be on the receiving end of the decisions they make. That changes how people listen. It changes what they feel. And it changes what they subsequently do.
I have sat in sessions with consultants who have clearly read all the right books, know all the right frameworks, and can cite all the relevant legislation. And I have watched leadership teams nod politely, take the handouts, and change absolutely nothing. The information landed. The meaning did not.
Lived experience closes that gap. It creates the emotional and moral urgency that turns good intentions into actual change.
So if you are choosing a disability inclusion consultant, here is my honest advice: find out whether they have lived experience of disability. Not because it is the only thing that matters — expertise, rigour, and sector knowledge matter too — but because it is the thing that will make the difference between a consultant who helps you understand disability inclusion intellectually and one who helps you actually change.
I lead with my disability not in spite of my professionalism, but as an expression of it. The most important thing I bring to every engagement is not my knowledge of the Equality Act or the Disability Confident framework. It is the fact that I know what it feels like to be on the wrong side of the gap that organisations so often leave between their intentions and their impact. That knowledge is not a footnote. It is the foundation.